CF is merciless and there’s no explaining why one person’s body succumbs to the disease when another’s does not. In the CF community, we share our triumphs, but also our trauma.
Practicing yoga has given me more peace and gratitude toward my body. I am still a warrior… my body needs warriors just like the world needs warriors. But the world needs peacemakers, too . . .and that’s something I’m learning to be a little at a time.
I am the mother of two young children who were diagnosed with Cystic Fibrosis at birth. I knew next to nothing about CF before my first child’s diagnosis. As it were, my discovery of yoga unfolded right alongside my journey as a mother to these two amazing kids I have the honor of calling my own!
Last week’s news that a life-changing CFTR modulator was on the way was the most exciting thing that’s ever happened to me. And yet, if I’m being honest… it also intimidates me. Because based on what I can already see my limited look at this new reality, there are some things I’m going to have to un-learn and re-learn about my own body.